In South-East London we treat one third ,approximately 5000, of the sickle cell disorder (SCD) patients in the UK, a condition most common in people with an African or Caribbean family heritage.

King's College NHS Trust have an emerging cohort of older adult patients living with sickle cell disorder accessing health services, however, average life expectancy for these patients in the UK is still over 20 years shorter compared to the general population and quality of life is severely hampered due to associated illnesses with this condition, leading to strokes, kidney failure, heart failure and joint damage, among others.

Join us for the first focus group hosted by the Sickle Cell Society on Thursday 11th September 2025 at 5pm and share your thoughts and opinions on the following themes:-   

• Care with Compassion ( with a focus on staff education and its affect on the mental health of patients)
• Mental Health & Well Being
• Financial Stability

Focus Group Agenda

17:00 Introduction (Aidan Rylatt, Sickle Cell Society & Virginia Tshibangu, Sickle Cell Clinical Nurse Specialist)

17:10 Participant introductions

17:20 Q&A Session Theme 1: Care with compassion (All)

17:40 Q&A Session Theme 2: Mental health and wellbeing (All)

18:00 Q&A Session Theme 3: Financial stability (All)

18:20 Meeting Close (Aidan Rylatt, Sickle Cell Society)

18:30: Close

We look forward to seeing you.

KHP Haematology