Wednesday, January 15, 2025
Robin Murray Lecture Theatre, London, United Kingdom
Wednesday, January 15, 2025
Robin Murray Lecture Theatre, London, United Kingdom
In South-East London we treat one third ,approximately 5000, of the sickle cell disorder (SCD) patients in the UK, a condition most common in people with an African or Caribbean family heritage.
King's College NHS Trust have an emerging cohort of older adult patients living with sickle cell disorder accessing health services, however, average life expectancy for these patients in the UK is still over 20 years shorter compared to the general population and quality of life is severely hampered due to associated illnesses with this condition, leading to strokes, kidney failure, heart failure and joint damage, among others.
Together with King's Charity and the Sickle Cell Society, King's Health Partners are launching a project to co-design a pathway that identifies and addresses what matters most to people living with sickle cell disorder. The project aims to identify and understand their concerns to improve their physical, mental, social and emotional health, and support them and their loved ones to plan for their futures.
Join us for the official launch of the Ageing Well With Sickle Cell (AWWSC) Project on 15th January 2025 at 5pm.
DRAFT EVENT SCHEDULE
5.00pm - Registration
5:30pm - Welcome
5.35pm - Patient and Public Engagement and Involvement - Marie Clough, KHP Haematology Programme Lead
5.45pm - “Ageing not so well with sickle cell” - Arne De Kreuk, Consultant Haematologist, Kings College Hospital
5.55pm - Patient Story
6.05pm - Closing - Subarna Chakravorty, Consultant Paediatric Haematologist, Kings College Hospital
6.15pm - Q&A Session
6.30pm - Networking/Light Refreshments
7.00pm - Close
Register today for the chance to be involved in a project that will reshape current care approaches, address health inequalities and support those living with this disorder to age well.
We look forward to seeing you.
Robin Murray Lecture Theatre
Institute of Psychiatry, Psychology and Neuroscience Main Building, 16 De Crespigny Park, London, SE5 8AF United Kingdom
The Robin Murray theatre is located in the Institute of Psychiatry, Psychology & Neuroscience (IOPPN) Building. It can be easily accessed via public transport.
By bus:
King’s College Hospital, Denmark Hill: 40, 68, 176, 185, 468, 484.
Camberwell Green (about 10 minutes walk): 12, 35, 36, 42, 45, 345, 171.
Coldharbour Lane (about five minutes walk): 35, 45, 345.
By train:
Denmark Hill rail station is a 7-minute walk. Loughborough Junction station is a 10-minute walk. Denmark Hill Rail Station is served by rail services from London Victoria, Blackfriars and Elephant and Castle stations; together with the new London Overground extension which runs between Surrey Quays and Clapham Junction stations.
Loughborough Junction Rail Station 15- min walk and is served by Thameslink trains from London Blackfriars via Elephant and Castle.